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My physio finishes at the end of August. I'm better, but.... I'm trying to come to terms with being less than 100% Post-stroke. #stroke #recovery #recoveryefforts


Four hours: travel to doctor, get letter, go to shop, get food, use train, go to another shop get food, use train, go home.

Exhausted. Hate this. Lots of little things add up. But I did it, which is positive I suppose. And COULD do it.

#smallwins #stroke #recovery #recoveryefforts



30 mile bike ride was a joy today. Getting my fitness back.

Eyesight is improving with exercises to eye muscles.

Core is strengthening.

Still find balance is off when walking sometimes and crowds are overstimulating.

A work in progress.

#smallwins #stroke #recovery #recoveryefforts



Let me get this straight: 37 miles cycling in one hit is a doozy. 5km run in 35°c heat is doable(at pre-stroke pace too!).

Walking to the hospital and dreading going there? That emotional baggage and mental work fills my head to the point that it exhausts me.

Bloody brain. Needs rewiring.

#recovery #post-stroke #stroke #mentalhealth #brain

Unknown parent

friendica (DFRN) - Link to source
Cee75
@plan-A
I'm having some down time! Cheers!


As far as #stroke #recovery goes, it's been a good week. Just over 7 months Post-stroke and I've run my first 5km. Not fast. But endurance is the key.

Running is not about speed, it's about managing discomfort. Or something like that.

in reply to Cee75

@Cee75

I have always loved running. It gives me a chance to focus on my breathing and body. Something I tend to ignore for most of the day. 😉



I finally got a timely #stroke rehabilitation appointment scheduled. Only took 6 months post-discharge.

Whatever #recovery I have had so far has been self-induced. And whatever #symptoms I currently have should have been supported by the medical profession but weren't. Things are slowly changing though.

#health #Welfare #support



Since having this #stroke my mood swings between "I feel abandoned why won't anyone fix me" to "this is how I am now, I had best get on with it".

In both cases it is a constant battle every day:

Planning, energy levels, #spoons and all that. Every little thing needs accounting for and explicitly prepping.

Thinking about what I can or should achieve, how far I can go, what timings are. All these little things that you'd take for granted. Add to that a language and cultural barrier that has hampered my recovery and left me constantly on edge and in fear of my life (in case I relapse and suddenly fall over dead) and I'm tired.



I finally got an appointment booked with a half-way decent neurologist! Just 100 days away....

#stroke #survival #survivor #neurology #brain




No matter what I do, bang! 3am. I'm awake. Think it my be some weird circadian rhythm #stroke thing.
Unknown parent

friendica (DFRN) - Link to source
Cee75
@plan-A I've been like this for months. Years really, but the 3am pattern is new and weird.


It makes sense to sit by the #river and drink mediocre coffee for free, than spend #money I don't have on #travel to a place that's too loud and #overstimulating to drink #mediocre #coffee for a price I can't #afford.

#autism #recovery #stroke #mentalhealth



#Struggling with the after effects of a #stroke is incredibly #isolating. I have a #therapy session tomorrow. But that is more a case of "we'll help you find out what care you SHOULD have got and didn't".

#teethgrinder #ObscureReference #genx