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Four hours: travel to doctor, get letter, go to shop, get food, use train, go to another shop get food, use train, go home.

Exhausted. Hate this. Lots of little things add up. But I did it, which is positive I suppose. And COULD do it.

#smallwins #stroke #recovery #recoveryefforts


in reply to Oasus Plainsview

borders on malicious compliance:
They manage to fullfil what the pretense of the act is ("think of the children!"), without letting the surveillance and excessive pii hoarding (ID documents, face videos, etc.) that the pushers of the act coveted.

Cee75 reshared this.


Autistic Burnout isn’t failure.

It’s not weakness.

It’s not a sign that you didn’t try hard enough.

Autistic Burnout is what happens when the world demands your mask.

When your needs are invisible, your rhythms ignored, and your value tied to performance.

It’s not just exhaustion...

It’s a full-body protest.

A sacred “no more.”

Autistic burnout isn’t about giving up.

It’s about being forced to disconnect from yourself just to survive.

You don’t need to bounce back.

You need space to return to yourself.

That’s not recovery.

That’s liberation.

@actuallyautistic #ActuallyAutistic

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in reply to Matthew | The Autistic Coach

I want us all to come up with a more severe sounding term for Autistic burnout. I came up with a new term for meltdown, as that term brings up visions of 2 year olds having a tantrum. My new phrase for meltdown is “cascading overload”. I wonder if we could find some other electrical terms that would encompass the burnout.

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in reply to LittleScrapsoftheNorth

@littlescraps I like that! I'm a big fan of the Murderbot Diaries, and one of the things I really appreciate are the emergency shutdowns when it's injured.

Maybe something from the nuclear industry like "core exposure"?

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in reply to Annelies Kamran, Ph.D.

@akamran @littlescraps
"Scram is sometimes cited as being an acronym for safety control rod axe man or safety cut rope axe man."
"...had an actual control rod tied to a rope with a man with an axe standing next to it; cutting the rope would mean the rods would fall by gravity into the reactor core, shutting the reactor down."

So now I have the image of a little man in my head ready to cut the rope to a control rod ready to shut me down. I can blame shutdowns on him. 😆

The metaphor does work well for how I feel in shutdown though, like any reactions are just being absorbed by control rods thrust into my head.

Which just reinforces that the term 'meltdown' works well for me also, but then I'm a sci & tech nerd. The term may convey something different to other people like you say, littlescraps. 🤷

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in reply to LittleScrapsoftheNorth

@littlescraps
I contend it is clinical PTSD. Multiple burnouts is C-PTSD.

Burnout we used to call a ‘nervous breakdown’ but neither of those things are clinical diagnosis.

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in reply to Jo with elbows up & chin up

@littlescraps
most of us have experienced a tremendous amount of bullying, abuse, trauma and a lack of compassion, support, or safe space, non-stop in our lives. I think it’s that hopelessness and feeling of no way out is what brings us to burnout/ptsd.

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in reply to LittleScrapsoftheNorth

@littlescraps this is one of my fav topics. i believe just about every term - burnout, meltdown, special interest, stim et al are inherently ableist. i'd like a whole new vocab

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in reply to LittleScrapsoftheNorth

I tend to use two metaphors, not electrical though:

- Material fatigue en.wikipedia.org/wiki/Fatigue_… for the internal perception and progression of damage
- Aerodynamic stall en.wikipedia.org/wiki/Stall_(f… for how it depends on the plane's shape and speed, the way usual control mechanisms become useless, and getting out of a stall requires counterintuitive actions


in reply to Sean C.

Um... That's just a bit too close for my tastes. Like a really can't believe that they mean to be like that, but it's like, "how did I not express this clearly?" "How did you understand it to mean that thing?" And really that "clearly you mean this thing that you didn't say." Or, "You said this, and that's as far as I paid attention to..." And this has been in written communication not where they interrupt.
in reply to Jigme Datse

@JigmeDatse i once had to repeat myself 5 times in 2 minutes because two people were just not listening and it wasn’t even a complex statement

@actuallyautistic @autistics

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Cee75 reshared this.


You think I’m hard to be around?

Try being me.

Try being a bodymind that doesn’t regulate the way you want it to.

A mind that notices everything and can’t let go.

A heart that feels too much and is still told it’s not enough.

Try begging for support and being told you’re too articulate to need help.

Try masking your entire existence just to survive a work meeting.

Try collapsing from burnout and then blaming yourself for not recovering fast enough.

I’m not hard to be around.

I’m exhausted.

And still here.

Still trying.

Still showing up.

You call that a problem?

I call that a f***ing triumph.

@actuallyautistic #ActuallyAutistic

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Internalized ableism, as I see it, is a deeply ingrained way of thinking that creates unnecessary pain and distress by comparing your current reality with some fictional ideal of what people “should” be able to do.

#ActuallyAutistic #AuDHD #Autistic #Neurodiversity #NeuroDivergent #ND

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in reply to Heather Cook🖖Autistic Coach

judge Judy on tv earlier "somebody with a disability, GOES TO A HOUSE WITH A BAT?? Don't be ridiculous"
Apparently, we're moral by virtue of disability?



Might delete my posts. Not sure about the purpose of this right now.
in reply to Cee75

@Cee75

Social Media is void of any purpose that you do not allot it. If you find it meaningless then it is. If you find it to be useful then it is. I would ask myself what value I have from sharing my views and ideas? Has it been productive? Was just expressing myself on a public forum in regards to all the ideas I have had pent up therapeutic?

Like you, I am a pretty much a loner. I do visit my children and grandchildren though do not get out nearly as often as society says I should. Though very few people follow me and I am sure I do not make any great impressions. I do find sharing my ideas and views to be therapeutic to me. Even if no one responds that is fine. I did not need anyone's approval as much as I just needed to say it. If that makes any sense to you.



Cee75 reshared this.


Just upgraded my car.

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30 mile bike ride was a joy today. Getting my fitness back.

Eyesight is improving with exercises to eye muscles.

Core is strengthening.

Still find balance is off when walking sometimes and crowds are overstimulating.

A work in progress.

#smallwins #stroke #recovery #recoveryefforts



wake me up when this AI bubble bursts!! 🤣


I can't willingly use that e-ink phone as a main device.

For the manufacturer to achieve "Google certification" they have to bundle the full suite of Google apps and services in a way that is.... Undoable.

You can disable some of the services and apps, but any attempts to "degoogle" the device are in vain as the system will restore anything uninstalled (via adb) on reboot. To get root is a pain and potentially leaves the device unable to obtain security updates.

The user has zero control.

I have spent more time setting up firewalls, blocks, and mitigations on this aggressively anti-user device than I have actually using it productively since getting it.

This makes me sad. I wish I wasn't "me" about it, but I cannot trust these companies or their services with my data, identity, or security. None of it has my wellbeing in mind, ever.

It just feels like I've got a phone with some kind of sexuallly transmitted infection that will never go away. I can't do it.

#herpes #degoogle

in reply to Cee75

in reply to Unus Nemo

@Unus Nemo Totally legit points to make. It just feels creepy. I'm tired of "things" doing "things" for me.

I have a DAP, it plays music, it stays off the network, it sounds good. Job done.

Same with my e-reader. I got a Linux-based one. It shows me e-books and I read them. That's it. It doesn't go on a network either. Easy.

This phone thing. I have wanted a mobile internet device since? Since WAP was a thing. Now, I really just want a couple of secure messaging programs, email and a browser.

I don't actually want a phone if I'm honest. I don't talk to people and SMS isn't a thing. I can't remember the last time I sent an sms... Maybe 2011? 2012? Apart from my bank, I don't know anyone who sends anything like that anymore. It's dead like the fax machine.

Messaging family overseas and referencing info can be useful. The whole "engagement, clicks, likes, subscribe, +1s, swipes and followers" thing? It's all a bit played out.

TL;DR I'm too old for this shit.




I might try using session for chatting. But not now. Sleeps.


Getting support from the medical establishment today was a relief. Came away from my doctor on Monday quite scared.


I had rehab/physio today. Damn my left side is not good. I have lost of exercises to do. For my body and my eyes.

My organiser turned up too! Need a nice pen for it now. And some inserts, like calendars, addressbooks etc.

Unknown parent

friendica (DFRN) - Link to source
Cee75
@plan-A
Ping but time for sleep here...


Let me get this straight: 37 miles cycling in one hit is a doozy. 5km run in 35°c heat is doable(at pre-stroke pace too!).

Walking to the hospital and dreading going there? That emotional baggage and mental work fills my head to the point that it exhausts me.

Bloody brain. Needs rewiring.

#recovery #post-stroke #stroke #mentalhealth #brain

Unknown parent

friendica (DFRN) - Link to source
Cee75
@plan-A
I'm having some down time! Cheers!


Lordy. If anything shows me the trouble I've got with muscles and balance #post-stroke and in #recovery, it's getting back on my #skateboard !!

Damn. I can cruise around. But flip tricks ? #nope.

I was never one for throwing it down like some guys and going hell for leather. But simple ollie? Casper flip? Damn. Least I'm out having a go.

That's called #activerecovery or something. 37 mile bike ride is easy. This shit right here?? Fine balance skills and vestibular input? Oooph.


Cee75 reshared this.


BTW, when the Big Tech bros wax poetic about eliminating passwords by requiring passkeys, you can bet they probably don't deal with anyone who doesn't have a phone and whose only access to the Internet is public computers like in libraries. And please don't suggest that someone who may have all their possessions in a shopping cart carry and use a Yubikey (even if USB ports weren't blocked on public computers, as they often are). The Bros often don't have a clue about the real world.
in reply to Lauren Weinstein

@rmondello @kevm “can’t actually use them” seems indicative of some pretty serious bugs on the part of flow implementers who don’t first confirm capability.


No #running today, or #cycling. Just walking and drinking somewhat mediocre coffee.... Gotta be done!

I have a soft spot for these #wonda #coffee things.

#recovery happens slowly .



Got my phone back.

Debloated and Degoogled it. Locked down the DNS, limited network access for apps (user and system), changed the default NTP server to a non-Android default one. Just in case.

Slowly migrating back on to it.



I think I overdid it. Muscles are very tight today.

in reply to Cee75

@Cee75

I am not a big fan of Fedilab as it is more Mastodon centric (though it is a great app for Mastodon) and I prefer Friendica. I use the PWA on my phone and tablet as it is the only way to get all the Friendica features on a mobile device.

Most modern browsers support PWA.

in reply to Unus Nemo

@Unus Nemo yeah. A lot of stuff just doesn't fit. I'm using the web browser a lot right now.


Not the best #weather for #running:

Time 10 am
Temp 31 °C
Feels Like 35 °C
Dew Point 21 °C
Humidity 55 %

Dew point reflects the actual amount of moisture in the air and determines how easily sweat evaporates. 21°c sucks.

in reply to Cee75



As far as #stroke #recovery goes, it's been a good week. Just over 7 months Post-stroke and I've run my first 5km. Not fast. But endurance is the key.

Running is not about speed, it's about managing discomfort. Or something like that.

in reply to Cee75

@Cee75

I have always loved running. It gives me a chance to focus on my breathing and body. Something I tend to ignore for most of the day. 😉


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Confrontation, even online, makes me physically ill. I hate it.

@actuallyautistic
#ActuallyAutistic

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in reply to Miss Gayle

Violent homophobia

Sensitive content

ActuallyAutistic group reshared this.



@plan-A what's the most important thing in messaging, in your opinion?

Session looks good. But if would be nice to use across desktop and mobile. Does it have offline messaging?

Matrix? Could work. Depends on your threat model though with a lot of this stuff.

in reply to Cee75

@plan-A Is the firebase integration an issue? I'm degoogled so... meh.


This takes me back. I haven't had one of these in.... Probably over a decade!


I tried watching Murderbot. I'd heard about it from the book I think.

Meh/10

Didn't really grab me. Think I've overdosed on "witty banter" Sci-fi and stuff recently.

Onward....

Unknown parent

friendica (DFRN) - Link to source
Cee75
@plan-A appletv. Newish. Based on some series of books. Available for free on the right places I expect.


Material


Currently devouring #Abarat 2, The #CliveBarker YA book. I have the third and like all his fans I'm desperate for books 4 and 5, but health.... I love Abarat.

I keep dipping into #elric here and there. I've done part/all of an #audiobook (difficult to remember because time passes). I "think" I've done: Elric of Melniboné. I can't remember if I listened to all of The Fortress of the Pearl, The Sailor on the Seas of Fate and The Weird of the White Wolf. It's a long audiobook!!

AFTER I've done #convergence book 2 (taking a break from #sci-fi for "urban fantasy"), I will dip back into Elric audio.

#Reading #books #Fantasy #bookstodon @bookstodon group group

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Went out for MacDo (because trashy Friday food). came back with Takoyaki and Nori bento. Oops.

Unknown parent

friendica (DFRN) - Link to source
Cee75
@plan-A cheers! I remember session. Must revisit to remind myself.
Unknown parent

friendica (DFRN) - Link to source
Cee75

@plan-A you might not want xmpp. It can be locked down but like many things there are issues.

Looking at element, simpleX, session...




Thought(s) for the day


The “everything’s ending and it’s my fault” feeling is a chemical lie, not a personal truth.

Allegedly.

It seems that being prescribed Clotiazepam for anxiety has it's positives and negatives.

File under: Things the hospital didn't tell me.

I've been on this stuff for seven months.

Clotiazepam is a class of drug called “thienodiazepines”. It is chemically similar to benzodiazepine.

Side effect include insomnia, rebound anxiety, dizziness etc etc etc.

I'm trying to taper off them now like I did venlafaxine. DON'T DO THAT DRUG.

Would explain a lot of things to do with my moods because I thought they weren't that effective. Except just stopping them has screwed me up. Go me!



Unknown parent

friendica (DFRN) - Link to source
Cee75

@plan-A I do 1 three game session. The maths/numbers ones blow me away.

Taking it slow.



Had to stop using e-ink phone. Software issues. Went back to "trying" to read on a "normal" phone.

God it's shit. E-ink has spoilt me!!



Busy morning


Let’s reflect on what I did this morning:

- ADB shell dumps of system & user apps on Android,
- Blocked SystemUI network traffic and monitored overall stability,
- Reverse-engineered APKs looking for HTTP beacons and hardcoded IPs, because spyware....
- Used VirusTotal + Hybrid Analysis to sandbox vendor .apks,
- Correlated IPs with ASN, location, and possible service origin, then isolated and blocked them,
- Avoided 'Google Play Protect' despite pressure, preserving system integrity against thread model and previous security hardening,
- Assessed potential psyops or disinfo campaigns online sparking user doubt in specific vendor hardware.

I need a drink.